ASPRDA ( Association for the Support of the Patients with Rare Diseases in Albania) was established in Albania in 2024 with the main scope of supporting children with genetic diseases diagnosed as rare disorders and their families in therapeutic and medicinal treatment.
In cooperation with other sister associations, our association seeks to achieve its goal legally and ethically, preserving the principles and rules of the health system and the relevant institutions.
Our association builds and maintains very close relationships with the specialized department near the “Mother Teresa” University Hospital that treats these pathologies (syndromes) and with the relevant institutions responsible for following and supporting policies in the health sector.
ASPRDA encourages any state or private initiative to support these patients who suffer from such pathologies and require extensive social support.
The support and organization of informative and sensitizing events of health services profiled for these pathologies, as well as the provision of the necessary literature to expand the knowledge of medical personnel, is also an important point of our activity as an association.
We intend to expand the membership in this association of individuals, parents or family members of patients, and others who show compassion and desire to support our charitable and informative programs and activities.