Upcoming Activity On February 28, 2025, we will arrange a workshop meeting involving specialized healthcare professionals (HCPs), patients and their families, as well as decision-makers from the Albanian Ministry of Health.

Over 35 participants will join the conference, which will take place in a dedicated hotel conference room and will last for 5 hours.

The primary aims of this meeting are to:

Increase specialized healthcare professionals’ awareness of Achondroplasia.
Increase our sway over decision-makers to champion new treatment options.
We would greatly appreciate Biomarin’s support in reaching our objectives and enhancing the quality of life for our patients and their families.